Walking in Their Shoes – My Eye-Opening Dementia Bus Experience

It’s one thing to read about dementia. It’s another to witness its effects on a loved one. But nothing prepared me for what I felt during the Dementia Bus Experience.

Recently, I had the opportunity to step aboard the specially designed Dementia Bus – a mobile simulation aimed at helping people understand what it might feel like to live with dementia. It was a brief journey, but the lessons I learned will stay with me for life.

What is the Dementia Bus?

The Dementia Bus is a sensory experience that recreates the confusion, anxiety, and disorientation often experienced by people living with dementia. Through the use of sensory-altering gear – such as gloves to limit dexterity, goggles that impair vision, and headphones simulating auditory hallucinations – participants attempt simple tasks in a controlled environment.

A World of Confusion

As I stepped inside, the lights dimmed and a low hum filled my ears – a disorienting noise meant to simulate the constant background confusion that many people with dementia experience. My vision was blurred, my hands clumsy. I was given basic instructions: “Set the table.” “Find the coat.” It sounds easy… until it isn’t.

In that moment, time seemed to slow. I wasn’t sure what I was doing wrong, but I knew I was failing. My hands fumbled, I couldn't find words, I forgot what I was told just seconds earlier. Frustration built. My heart raced. Even though I knew this was a simulation, I felt anxious, isolated, and vulnerable. I wanted out.

And then it hit me – this is everyday life for many people with dementia.

Lessons in Compassion

The experience left me a little shaken, but more importantly, It gave me a deeper empathy for those living with dementia and a renewed respect for caregivers. Most of all, it reminded me how vital patience, kindness, and understanding are when interacting with those affected.

Dementia isn't just memory loss. It’s a profound shift in how a person experiences the world.

Why Everyone Should Try It

The Dementia Bus Experience isn’t comfortable, and it’s not supposed to be. But it is powerful. If you're a caregiver or simply someone who wants to understand more about dementia, I highly recommend seeking out this experience if it's available in your area.

Because once you’ve walked a few minutes in those shoes, you’ll never look at dementia the same way again.

Emily Ind, care coordinator.

If you would like any support please do not hesitate to contact your practice.